A caregiver is a key component to a full and safe recovery. A caregiver may be a either a family member or friend. It needs to be someone who can be with the person receiving a stem cell transplant for the duration of treatment. Caregivers can rotate, but are needed to support the patient throughout the treatment process. It is important to start deciding who can fill this role prior to coming to the transplant center to begin a work-up evaluation.

We encourage the caregiver to be present during as much of the work-up evaluation process as possible. This will give the caregiver the opportunity to become fully informed about the upcoming treatment process. The caregiver can also help the patient with the great amount of information provided at this visit. In addition, the patient will need a driver after a bone marrow biopsy or any other procedures that require pre-medications.

Being a BMT caregiver requires a significant time commitment.  A caregiver’s responsibilities may include: 

• Assisting with the scheduled oral and intravenous medications after hospital discharge.
• Keeping an eye on the patient’s condition and identifying any changes or new symptoms.
• Caring for the patient’s central venous catheter.
• Knowing what to do in an emergency.
• Calling for medical help when needed.
• Maintaining a clean and comfortable home environment.
• Helping to prepare or provide meals for the patient.
• Providing transportation to and from the treatment center or clinic.
• Going with the patient to medical appointments.
• Communicating with transplant team members and gathering information.
• Helping with medical and hospital bills, insurance paperwork, and financial planning for the patient family.
• Communicating with other family members and friends.
• Providing emotional support and encouragement.

Education and support is provided to the caregivers so that you can be confident in your responsibilities. Having a caregiver present is an essential safety precaution and enhances the patient’s emotional well-being. It is also important that caregivers take care of their own health and emotional well-being. Your BMT team is here to support you in this challenging experience.  Please let us know your questions and concerns.